Since 2019, the Data Economy Lab has been studying organizations that act as data intermediaries or stewards of data. Building upon efforts by organizations like Ada Lovelace & Mozilla Foundation, we have compiled information on over 150+ initiatives across the globe - displayed in this repository below.
This repository is currently under development. We're in the process of building this out further and adding new models - Are we missing something? Write to us at [email protected] to learn more or add an organization
Curious to learn more about the value stewards can offer to their beneficiaries and how this is structured?
Watch interviews from our Tracking Stewardship video series which spotlights conversations we've had with practitioners to understand the multiple ways in which stewardship can be structured and how this varies across sectors.
We spoke to Matthias De Bièvre, CEO of Visions & Co-Founder of 'aNewGovernance', and during the discussion we learn how Visions is realising their goal of creating user-friendly, transparent and accessible data exchange networks in skills/education and mobility.
We spoke to Mad Price Ball, the Co-Founder of Open Humans' a platform 'dedicated to empowering individuals and communities around their personal data, to explore and share for the purposes of education, health, and research'.
We spoke to Hays Witt, the Co-Founder of Driver's Seat where we explored why Driver's Seat was founded and how it is structured to enable workers in the platform economy to derive maximum value and agency over their data - effectively reclaiming power in an otherwise inequitable data economy.
We spoke to Carrie Walter and learnt about Clue's vision and how this is supported by the responsible use and sharing of data with trusted research organization, powering inclusive studies on reproductive and menstrual health.
We spoke to Antti Piirainen, the head of communications at Findata, a Health and Social Data Permit Authority in Finland that issues permits for the secondary use of health and social data. During the discussion, we explore the processes and possible uses behind the secondary use of health and social data.
To better understand what data stewardship structures can look like, we've highlighted various models and engaged in conversation with practitioners. For our first video in the Tracking Stewardship series, we spoke to Ernst Hafen, the founder of MiData, a health cooperative. We explore how individual and collective value of health data can be unlocked while giving us greater control and agency over its governance..
2nd Floor, 1/36 Hanumanthappa Layout, 2nd, Cross, Ulsoor Rd, Bengaluru, Karnataka 560042
